It’s rare disease day! A day to raise awareness and educate others on little known diseases and how they affect us.
Did you know…
⭐️ There are about 7,000 inherited rare diseases
⭐️ 75% of rare diseases affect children
⭐️ 30% of rare disease patients die before their fifth birthday
⭐️ 95% of rare diseases are incurable.
My rare disease ‘Stargardts’ affects 1 in every 8,000 to 10,000 people worldwide and is a progressive, juvenile form of central vision loss with no treatment or cure. When I was first diagnosed, nobody had ever heard of Stargardts disease, including myself, which is why I made it my mission to raise as much awareness as possible and to educate others on how sight loss affects someone.
The theme for rare disease day 2023 is #LightUpForRare which I love ♥️ as often our diseases feel like they are sat in the shadows and need bringing into the spot light, so what a perfect day to do this!
Who else is living with a rare disease? Share yours in the comments and let’s spread the word xx