Browsing Tag

Awareness

Vision

World Sight Day 2019

October 10, 2019
World Site Day 2019 - Me with my sunglasses on.

Today is world sight day and ironically mental health awareness day too. As most of you know, I was diagnosed with Stargardts 2 years ago. Unfortunately, there is nothing that can be done for my eye disease, no treatment and as of yet, no cure. I have in those 2 years, lost 2 lines of the eye chart in both eyes and am only just hanging on to my driving licence. Stargardts is robbing me slowly of not only my…

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Vision

National Eye Health Week

September 24, 2019
A close up of me with a black top on and my dark hair down. I have orange tinted glasses on and bright pink lipstick.

From the 23rd September until the 29th September, it is National eye health week. Other than these orange blue light blocking glasses, I look the same as everyone else. My eyes are shiny, bright and on the surface, they look completely healthy. 2 years ago, almost to the day, I never in a million years thought I would be told by an eye specialist that I was going blind from Stargardts disease. My condition is rare and unfortunately, there is…

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Vision

Low Vision Awareness Month

February 22, 2019
A clock with the middle portion blurred out due to central vision loss.

February is low vision awareness month, so I thought I would do this blog post explaining some of the terms used when discussing vision loss and blindness. Whenever I tell people I have a problem with my eyes and am losing my central vision, a lot of the time I am asked how that is possible and they would never have known, because I have lovely eyes and they don’t look like there is anything wrong. When we think of…

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Lifestyle Vision

A Roundup of my 2018

December 30, 2018

As 2018 draws to an end, it has made me reflect on the year that I have had. When I was diagnosed with Stargardts in 2017, for a good few months it honestly felt like someone had ended my life. I was lost, confused and scared for much of the rest of that year following my diagnosis and I was consumed with the feeling of ‘why me’. I was grateful when my little boy suggested that we do something to…

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Lifestyle Vision

Christmas Memories

December 18, 2018
Thomas Land Pic

I have to be honest and say, I adore Christmas time, December is my favourite month of the year. Last Christmas I felt like I wasted the month by being very disorganised and dwelling on things too much and making myself stressed by trying too much to please others. This year I have already wrapped most of the gifts I have bought people and have decided that it will just be the 3 of us eating at home on Christmas…

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Vision

White Cane Day 2018

October 15, 2018
Blind disabled sign on white background. Vector illustration.

Today is white cane day. A lot of people living with Stargardts can manage very well on a daily basis without a long cane. Of course, there are exceptions who need one, or a guide dog, as everyone’s vision loss is different. A lot of people with central vision loss do use a signal cane though, which is a short small cane that can be held and doesn’t touch the floor. This is to alert others around them that they…

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