Rare Disease Day 2023
It’s rare disease day! A day to raise awareness and educate others on little known diseases and how they affect us. Did you know…⭐️ There are about 7,000 inherited rare…
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Posts by tag
Awareness
17 posts
This is how I see with Stargardts disease.
This is how I see with Stargardts disease. This is why I struggle to recognise people even including my own children if they are far enough away. The closer I…
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BBC News Interview
In November I did an interview with a BBC reporter about my Stargardts journey and today it’s been published. If anyone would like to read it, the link is below.…
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BBC Radio Northampton Interview with Kerrie Cosh
Tonight I was on my local radio station and this is the interview. I have been dealing with high anxiety at the moment and I didn’t think I could do…
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Podcast – RNIB – The Happy Hour with Holly Tuke
This is the podcast I was asked to do by Holly Tuke from the RNIB who I must say was brilliant! Listen to the podcast below in full or my…
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Will glasses help?
This is something that I get asked a lot. “Can glasses help with your eyesight?” The short answer to this is no. My eye condition (stargardts) is a genetic disease…
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Low vision awareness month and Stargardts disease
February is low vision awareness month. I thought this was a good opportunity to talk about my eye condition, Stargardts disease, that is taking away my precious eyesight. Stargardts disease…
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