All Posts By

Katie

Lifestyle Vision

JUDGEMENT

June 24, 2020
Picture description - Me holding Sawyer. We are standing in fields and it’s sunny. We have summer clothes on, and I have my dark hair down.

I can’t believe this one is going to be 1 this weekend. I know everyone says the same thing, but I honestly don’t know where that year has gone. Sawyer is the sweetest, happiest baby and has bought me so much joy in the midst of my despair over my Stargardts diagnosis.  I got told by another mum this past week, that she saw absolutely no logic in me having another child knowing that I have a genetic, progressive eye…

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Vision

Macular Week 2020

June 22, 2020
Me wearing a blindness is a spectrum t shirt with my hair and makeup done.

This week is macular week. Nearly 1.5 million people in the UK alone are affected by macular disease, I am one of them.  Stargardts disease, the condition I have is genetic. I have a fault in my genes that prevents me from being able to process vitamin A and it is this that causes the damage to my macular. Although my type of macular disease is rare, 1 in 10 people reading this, will be diagnosed with macular degeneration by…

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Health and Beauty Vision

A glimpse into chronic life, by COVID-19

March 16, 2020

COVID-19, I think everyone knows what it is by now and is feeling the effects of this highly contagious virus. People have lost holidays from the travel bans and others are worrying about loss of earnings and having to self-isolate. Our freedom of movement is being compromised and many aren’t dealing with the restrictions very easily.  Hopefully all of this will be over in a few months, but imagine if this was actually your life day in day out, forever.…

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Health and Beauty Lifestyle Vision

Behind The Smile

February 17, 2020
Smile

“It’s not always the tears that measure the pain. Sometimes it’s the smile we fake”. Most people will have heard by now of the tragic death of Caroline Flack ♥️ the woman who seemed to have the perfect life and the brightest smile. We seem to assume that if someone appears happy on the surface and especially on social media, then all must be ok. It’s so very easy to hide behind a smile, a smile is easy to fake.…

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Vision

Low vision awareness month and Stargardts disease

February 11, 2020
what is Stargardts disease wording and a picture of me

February is low vision awareness month. I thought this was a good opportunity to talk about my eye condition, Stargardts disease, that is taking away my precious eyesight.  Stargardts disease is an incurable, progressive, genetic juvenile eye condition, so I have this through no fault of my own. I had regular eye tests my whole life, but nothing was ever picked up until I was 31, even though I never had 20/20 vision. Stargardts disease is caused by a fault in…

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Lifestyle

Remembering You

February 4, 2020

Yesterday I said goodbye to my Grampa George. It was honestly one of the hardest days of my life, but something I couldn’t avoid and just had to get through it. It was a lovely day as strange as that sounds, and he would have been proud of his send off. I would do anything to have just one more conversation with him 💙, but I know that this can’t and won’t happen.  The last few years have taught me that life can…

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Lifestyle

You will always be in my heart, because there you are still alive 💙

January 15, 2020
Me and My Grampa George

On Thursday evening, my Grampa passed away suddenly. I will never forget the phone call from my mum. My Grampa was the only constant and consistent male relative in my life from the day I was born and was more like a dad to me 💙. It was so much better for him to have left us the way he did, but because he left without warning, I feel like I haven’t been able to say all of the things…

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