“It’s not always the tears that measure the pain. Sometimes it’s the smile we fake”. Most people will have heard by now of the tragic death of Caroline Flack ♥️ the woman who seemed to have the perfect life and the brightest smile. We seem to assume that if someone appears happy on the surface and especially on social media, then all must be ok. It’s so very easy to hide behind a smile, a smile is easy to fake.…
February is low vision awareness month. I thought this was a good opportunity to talk about my eye condition, Stargardts disease, that is taking away my precious eyesight. Stargardts disease is an incurable, progressive, genetic juvenile eye condition, so I have this through no fault of my own. I had regular eye tests my whole life, but nothing was ever picked up until I was 31, even though I never had 20/20 vision. Stargardts disease is caused by a fault in…
Purple Tuesday With today being purple Tuesday, I thought it would be a good day to discuss what I have been invited to on Thursday evening, but first here is a bit about today 💜. Purple Tuesday is a day that makes customer facing businesses more aware and is to inspire them to improve a disabled persons customer experience when shopping with them. By a company making just one positive change to their business for accessibility, it will create a wider…
Today is world sight day and ironically mental health awareness day too. As most of you know, I was diagnosed with Stargardts 2 years ago. Unfortunately, there is nothing that can be done for my eye disease, no treatment and as of yet, no cure. I have in those 2 years, lost 2 lines of the eye chart in both eyes and am only just hanging on to my driving licence. Stargardts is robbing me slowly of not only my…
Ironically to end eye health week, it is my 2-year anniversary of my official Stargardts diagnosis. 2 years ago, to the day I walked out of Moorfields Eye Hospital and my whole life had changed forever. Being told you are losing your eyesight at 32 is just something that unless you have been through it, you cannot comprehend. Some people may not understand me when I say this, but I felt in a way that I had been given a terminal…
From the 23rd September until the 29th September, it is National eye health week. Other than these orange blue light blocking glasses, I look the same as everyone else. My eyes are shiny, bright and on the surface, they look completely healthy. 2 years ago, almost to the day, I never in a million years thought I would be told by an eye specialist that I was going blind from Stargardts disease. My condition is rare and unfortunately, there is…
