Today is world sight day and ironically mental health awareness day too. As most of you know, I was diagnosed with Stargardts 2 years ago. Unfortunately, there is nothing that can be done for my eye disease, no treatment and as of yet, no cure. I have in those 2 years, lost 2 lines of the eye chart in both eyes and am only just hanging on to my driving licence. Stargardts is robbing me slowly of not only my…
Ironically to end eye health week, it is my 2-year anniversary of my official Stargardts diagnosis. 2 years ago, to the day I walked out of Moorfields Eye Hospital and my whole life had changed forever. Being told you are losing your eyesight at 32 is just something that unless you have been through it, you cannot comprehend. Some people may not understand me when I say this, but I felt in a way that I had been given a terminal…
From the 23rd September until the 29th September, it is National eye health week. Other than these orange blue light blocking glasses, I look the same as everyone else. My eyes are shiny, bright and on the surface, they look completely healthy. 2 years ago, almost to the day, I never in a million years thought I would be told by an eye specialist that I was going blind from Stargardts disease. My condition is rare and unfortunately, there is…
If I was stood in a room with 50 other people, would you know that I am the one going blind? Would you know just by looking at me how much I struggle to see my children’s faces or how I can no longer read easily from a book or that watching TV is becoming really difficult? Would you know just from looking at me that I have flashing lights in my central vision all the time and doing my…
Our holiday has sadly come to an end, but we have made some wonderful memories 💙. I don’t know if it’s because I wasn’t at home with my usual routine and things I am used to every day, but I really did notice my vision loss whilst I was away. Watching seagulls fly in and out of my blind spots, trying to look for the seal whilst everyone else was already watching him bob around the harbour, trying to work…
This picture was taken last August in Croatia. I felt like my life was very surreal at this point after my Stargardts diagnosis. I felt pretty lost to be honest and panicked that I needed to see more and experience more of this world that we live in, before my eyesight declined. In hindsight, I would love to see more beautiful places and travelling does make me happy, but I get just as much joy at home daily watching my…
