Two years ago today I went by myself, to the opticians, for what I thought was just a 2-yearly check-up. 10 minutes into my appointment, and Stargardts had changed my life forever. 2 years on and although I have devastatingly already lost 2 lines of the eye chart in both eyes and there is deterioration on my scan pictures (although I am hoping with all I have that my eyes get slightly better once my baby is here) I am…
So tomorrow I will be 36 weeks pregnant. This pregnancy has really flown by and it’s scary to think I had Harvey at 38 weeks so may only have a couple of weeks left,…
May is health vision month. A lot of people who know me and my incurable eye disease may wonder why I bother to promote eye health and urge people to go to the opticians…
After the sadness of my appointment last Friday, and dealing with the fact that my eyes are progressing, I had totally forgotten our 4D baby scan was booked for the following weekend. At the…
A week today and I will be at Moorfields and will find out how much my vision has changed in the last 18 months. The last 18 months have flown by and I really…
I have thought long and hard about posting this blog post and then I thought that at the end of the day, I use this to get my thoughts and feelings down and my…
A couple of years ago, I never could begin to imagine that I would be writing about rare disease day, but here I am, with my rare disease, explaining to others why February the…
