When I first had Sawyer, I tried my hardest to breast feed as not being able to with Harvey really got me down at the time. Sawyer was perfect at latching but was such a big baby, I struggled to provide him with enough to ever settle him. The main reason I gave it up however, was that I was desperate for my hormones to settle to give my eyes some kind of a chance to right themselves after having…
This picture was taken last August in Croatia. I felt like my life was very surreal at this point after my Stargardts diagnosis. I felt pretty lost to be honest and panicked that I needed to see more and experience more of this world that we live in, before my eyesight declined. In hindsight, I would love to see more beautiful places and travelling does make me happy, but I get just as much joy at home daily watching my…
So tomorrow I will be 36 weeks pregnant. This pregnancy has really flown by and it’s scary to think I had Harvey at 38 weeks so may only have a couple of weeks left, eek! I have come out in a horrible cold the last couple of days and I’m struggling to sleep at night as much as I was because I can’t get comfy at this stage anymore. I have noticed a big change in my eyes the last…
After the sadness of my appointment last Friday, and dealing with the fact that my eyes are progressing, I had totally forgotten our 4D baby scan was booked for the following weekend. At the time, I booked the scan after Moorfields, in case I received bad news and needed something to look forward to. When the reminder came up on my phone last Sunday, excitement washed over my upset. I can’t deny I was slightly apprehensive about the 4D scan…
I have thought long and hard about posting this blog post and then I thought that at the end of the day, I use this to get my thoughts and feelings down and my thoughts and feelings are valid. It’s not my intention to offend anyone, just to give my opinion. My Moorfields appointment is coming up soon and I can’t even express the anxiety and worry that this has created inside of me. I have been crying at the…
I finally feel brave enough to discuss my pregnancy now we are over half way and had our 20-week scan 💙! I feel I have been in hiding with it for the past few months, but this time round I have been so sick. Morning sickness wasn’t just in the morning and through the months of November and December was relentless and 24/7 of feeling sick and actually being sick to the point I was prescribed anti sickness tablets to…
As 2018 draws to an end, it has made me reflect on the year that I have had. When I was diagnosed with Stargardts in 2017, for a good few months it honestly felt like someone had ended my life. I was lost, confused and scared for much of the rest of that year following my diagnosis and I was consumed with the feeling of ‘why me’. I was grateful when my little boy suggested that we do something to…
