Our holiday has sadly come to an end, but we have made some wonderful memories 💙.
I don’t know if it’s because I wasn’t at home with my usual routine and things I am used to every day, but I really did notice my vision loss whilst I was away. Watching seagulls fly in and out of my blind spots, trying to look for the seal whilst everyone else was already watching him bob around the harbour, trying to work out which was my husband and Harvey body boarding only being able to go by their movements and mannerisms that I am used to, to pick them out of the crowd, struggling to see creatures in the rock pools, just lots of little things like this. The one thing that really bothered me was when Greg was poorly and Harvey, Sawyer and I went out to the beach on our own in the evenings. It took me a long time to focus on anything and I could barely make out the steps down to the beach which frightened me a bit as they were extremely steep. I felt a lack of confidence in myself, but I didn’t let it show to Harvey and I carried on making memories regardless.
This holiday has made me realise though how visual life is. A lot of our holiday chat was things we could see or what we had seen, and this has panicked me a lot. It has made me think about what I will miss out on when my vision gets worse and will I get left behind? Will people remember to talk to me about other things or have enough patience to explain things in more detail? Whatever happens in the future, I just want people to know that this world is intimidating when your vision starts to fade and that all of us with vision loss are just trying our best to carry on living but may just need a little more patience and a little bit more of your time to help us enjoy this life with you ❤️.
2 comments
Indeed, Katie, patience is something anyone with, or anyone facing, disability needs. We need to be patient, but we also need people to be patient with us. Sometimes it takes longer and might seem foreign to others. In the end, kindness matters.
💙💙