Browsing Tag

Support

Vision

World Mental Health Day 2018

October 10, 2018
Me

Today was world mental health day. Before my diagnosis of Stargardts, I had struggled with anxiety, panic attacks and borderline agoraphobia on and off since the age of 14. I was no stranger to being somewhere completely safe, but going into a panicked meltdown and feeling absolutely terrified for no reason. I had many years of therapy for this, counselling and muddled on through life not really telling anyone except my mum and husband for fear of people judging me.…

Continue Reading

Vision

Stargardts Picnic – Hyde Park

August 19, 2018

Just after my diagnosis last year, I heard about a Stargardts picnic that was happening in Hyde park, where lots of people with this disease got together to meet others going through the same thing. This time last year I was not ready to meet anyone else with Stargardts, and the opportunity passed me by. The picnic was organised again this year and by now I was desperate to meet others with the same as me as sometimes this disease…

Continue Reading

Vision

Two Blind Brothers Ambassador

May 14, 2018

After being diagnosed, I wasn’t given any information from my local hospital about my disease and was basically left to google everything. I wasn’t even told how much vision I would lose. After googling Stargardts, I came across the two blind brothers. I was so inspired about what I had read about them, that I went to find their Facebook page. After going through most of their posts, I felt so grateful that there were people out there trying to…

Continue Reading

Vision

Raising Money for Moorfields

March 4, 2018

Just after my official diagnosis in September 2017 I felt absolutely helpless and I will admit, I lost all purpose in life for a bit. I didn’t know who I was, what I wanted to do or even what I could do now with this massive weight of vision loss on my shoulders. I saw the Moorfields eye to eye walk one morning on Facebook and said to my little boy, maybe we should raise some money that could go…

Continue Reading