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Hope

Vision

World Sight Day 2019

October 10, 2019
World Site Day 2019 - Me with my sunglasses on.

Today is world sight day and ironically mental health awareness day too. As most of you know, I was diagnosed with Stargardts 2 years ago. Unfortunately, there is nothing that can be done for my eye disease, no treatment and as of yet, no cure. I have in those 2 years, lost 2 lines of the eye chart in both eyes and am only just hanging on to my driving licence. Stargardts is robbing me slowly of not only my…

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Vision

#Step4Sight

September 30, 2019
step4sight

I am raising money for my local sight loss charity ‘Northampton Association for the blind’, over the month of October. Please take a look at my just giving page to find out why 💜 thank you xx https://www.justgiving.com/fundraising/kayteebee…

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Vision

Two Years

September 29, 2019
Me wearing makeup and with tear shape jewels under my eye.

Ironically to end eye health week, it is my 2-year anniversary of my official Stargardts diagnosis. 2 years ago, to the day I walked out of Moorfields Eye Hospital and my whole life had changed forever. Being told you are losing your eyesight at 32 is just something that unless you have been through it, you cannot comprehend. Some people may not understand me when I say this, but I felt in a way that I had been given a terminal…

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Vision

National Eye Health Week

September 24, 2019
A close up of me with a black top on and my dark hair down. I have orange tinted glasses on and bright pink lipstick.

From the 23rd September until the 29th September, it is National eye health week. Other than these orange blue light blocking glasses, I look the same as everyone else. My eyes are shiny, bright and on the surface, they look completely healthy. 2 years ago, almost to the day, I never in a million years thought I would be told by an eye specialist that I was going blind from Stargardts disease. My condition is rare and unfortunately, there is…

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Travel Vision

Holiday Vision

September 9, 2019

Our holiday has sadly come to an end, but we have made some wonderful memories 💙. I don’t know if it’s because I wasn’t at home with my usual routine and things I am used to every day, but I really did notice my vision loss whilst I was away. Watching seagulls fly in and out of my blind spots, trying to look for the seal whilst everyone else was already watching him bob around the harbour, trying to work…

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Lifestyle Travel Vision

Hindsight

August 2, 2019
Me from the back in an infinity pool looking out to the sea in Croatia. I have my hair down and a neon green bikini on.

This picture was taken last August in Croatia. I felt like my life was very surreal at this point after my Stargardts diagnosis. I felt pretty lost to be honest and panicked that I needed to see more and experience more of this world that we live in, before my eyesight declined. In hindsight, I would love to see more beautiful places and travelling does make me happy, but I get just as much joy at home daily watching my…

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Vision

Two Years Today

June 13, 2019

Two years ago today I went by myself, to the opticians, for what I thought was just a 2-yearly check-up. 10 minutes into my appointment, and Stargardts had changed my life forever.  2 years on and although I have devastatingly already lost 2 lines of the eye chart in both eyes and there is deterioration on my scan pictures (although I am hoping with all I have that my eyes get slightly better once my baby is here) I am…

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