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Lifestyle Vision

A Roundup of my 2018

December 30, 2018

As 2018 draws to an end, it has made me reflect on the year that I have had. When I was diagnosed with Stargardts in 2017, for a good few months it honestly felt like someone had ended my life. I was lost, confused and scared for much of the rest of that year following my diagnosis and I was consumed with the feeling of ‘why me’. I was grateful when my little boy suggested that we do something to…

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Lifestyle Vision

Christmas Memories

December 18, 2018
Thomas Land Pic

I have to be honest and say, I adore Christmas time, December is my favourite month of the year. Last Christmas I felt like I wasted the month by being very disorganised and dwelling on things too much and making myself stressed by trying too much to please others. This year I have already wrapped most of the gifts I have bought people and have decided that it will just be the 3 of us eating at home on Christmas…

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Lifestyle Vision

Fitting In

November 15, 2018
Me looking out at the beautiful view in Croatia.

Sometimes, I just feel like I don’t fit in. This isn’t something new to be honest, struggling with debilitating anxiety from 14 years old onwards, gave me a good taster of what it is like to not feel accepted, or left out when you feel you have no will power to try and get yourself out of the house, or have to make another excuse why you can’t go to a party or meet up with friends. People accepted it,…

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Vision

Charles Bonnet Syndrome

November 9, 2018

Today I want to talk about Charles Bonnet Syndrome. This is something that people without sight loss and actually a lot of people with sight loss, don’t know much about, or haven’t heard much about it before. Charles Bonnet Syndrome is visual hallucinations caused by failing vision. The hallucinations can be static or moving and can be very vivid, which in turn can be frightening for people. They can also be reoccurring patterns. I am lucky that I haven’t experienced…

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Lifestyle Travel Vision

Memories vs To Do List

October 30, 2018
Brixham Harbour Photo

Last week was half term and my husband had booked some time off of work. We have a jobs list for the house as long as I care to admit, so we debated whether this time and money should be spent on that. It’s not that anything major needs doing, it could just do with re painting in most of the rooms and some of our furniture could do with being replaced. The thing is, the house doesn’t excite me…

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Vision

White Cane Day 2018

October 15, 2018
Blind disabled sign on white background. Vector illustration.

Today is white cane day. A lot of people living with Stargardts can manage very well on a daily basis without a long cane. Of course, there are exceptions who need one, or a guide dog, as everyone’s vision loss is different. A lot of people with central vision loss do use a signal cane though, which is a short small cane that can be held and doesn’t touch the floor. This is to alert others around them that they…

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Vision

World Mental Health Day 2018

October 10, 2018
Me

Today was world mental health day. Before my diagnosis of Stargardts, I had struggled with anxiety, panic attacks and borderline agoraphobia on and off since the age of 14. I was no stranger to being somewhere completely safe, but going into a panicked meltdown and feeling absolutely terrified for no reason. I had many years of therapy for this, counselling and muddled on through life not really telling anyone except my mum and husband for fear of people judging me.…

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