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Vision

Lifestyle Travel Vision

Memories vs To Do List

October 30, 2018
Brixham Harbour Photo

Last week was half term and my husband had booked some time off of work. We have a jobs list for the house as long as I care to admit, so we debated whether this time and money should be spent on that. It’s not that anything major needs doing, it could just do with re painting in most of the rooms and some of our furniture could do with being replaced. The thing is, the house doesn’t excite me…

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Vision

White Cane Day 2018

October 15, 2018
Blind disabled sign on white background. Vector illustration.

Today is white cane day. A lot of people living with Stargardts can manage very well on a daily basis without a long cane. Of course, there are exceptions who need one, or a guide dog, as everyone’s vision loss is different. A lot of people with central vision loss do use a signal cane though, which is a short small cane that can be held and doesn’t touch the floor. This is to alert others around them that they…

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Vision

World Mental Health Day 2018

October 10, 2018
Me

Today was world mental health day. Before my diagnosis of Stargardts, I had struggled with anxiety, panic attacks and borderline agoraphobia on and off since the age of 14. I was no stranger to being somewhere completely safe, but going into a panicked meltdown and feeling absolutely terrified for no reason. I had many years of therapy for this, counselling and muddled on through life not really telling anyone except my mum and husband for fear of people judging me.…

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Vision

The one that gets forgotten 💙

October 5, 2018
Me and Harvey looking out on the lake at lake garda,

When I was diagnosed with Stargardts last year, my little boy had only just had his 6th birthday. At 6 it gets a lot harder to hide things from them. Obviously, the days after my diagnosis was mainly spent with me crying, not eating, not being able to sleep and generally acting like nothing my little boy had experienced from me before. Sometimes as much as we try, we can’t keep things confined inside and although as a mum I…

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Vision

One Year Vision Loss Anniversary

September 30, 2018
my detailed eye picture from hospital

So, it’s happened, my one-year vision loss anniversary has finally come around. It was a weird day, obviously the same as the other days before it, but full of upsetting memories. I remember how petrified I was the day my husband drove us to London to Moorfields eye hospital. waiting in the room disorientated by the drops they put in that make everything completely blurry and send you into an anxious panicked state that those drops simulate your future. The…

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Vision

Journey to the Centre of the Eye

September 27, 2018
My dog called Loco, on a walk for journey to the centre of the earth.

Today Loco and I walked fight for sights journey to the centre of the eye. This is a virtual race where you’ll experience the world from a different perspective. Fight for sight’s description is as follows, “you will be shrunk down and chase a photon of light through the eye and on to the brain – discovering how it is your eyes bring the wonders of the world around you to light”. This was a great learning experience, as at…

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Vision

Macular Society Conference 2018 – London

September 23, 2018
macular society header and me

Main photo above: Me stood next to the macular society conference sign. I attended the macular society conference in London yesterday which was a brilliant day and well worth going to if anyone fancies it next year 😊. I loved finally meeting a man called Paul, who really helped me when I was first diagnosed and the get together afterwards was great too, chatting to others going through the same thing was very comforting ❤️. I also got to meet the…

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