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Vision

Vision

National Eye Health Week

September 24, 2019
A close up of me with a black top on and my dark hair down. I have orange tinted glasses on and bright pink lipstick.

From the 23rd September until the 29th September, it is National eye health week. Other than these orange blue light blocking glasses, I look the same as everyone else. My eyes are shiny, bright and on the surface, they look completely healthy. 2 years ago, almost to the day, I never in a million years thought I would be told by an eye specialist that I was going blind from Stargardts disease. My condition is rare and unfortunately, there is…

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Vision

Would you know?

September 12, 2019
a close up of me with my brown hair down. I am wearing full make up and pink lipstick and have a flowery black top on. I am standing in front of grey wallpaper with flamingos on.

If I was stood in a room with 50 other people, would you know that I am the one going blind? Would you know just by looking at me how much I struggle to see my children’s faces or how I can no longer read easily from a book or that watching TV is becoming really difficult? Would you know just from looking at me that I have flashing lights in my central vision all the time and doing my…

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Travel Vision

Holiday Vision

September 9, 2019

Our holiday has sadly come to an end, but we have made some wonderful memories πŸ’™. I don’t know if it’s because I wasn’t at home with my usual routine and things I am used to every day, but I really did notice my vision loss whilst I was away. Watching seagulls fly in and out of my blind spots, trying to look for the seal whilst everyone else was already watching him bob around the harbour, trying to work…

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Lifestyle Travel Vision

Hindsight

August 2, 2019
Me from the back in an infinity pool looking out to the sea in Croatia. I have my hair down and a neon green bikini on.

This picture was taken last August in Croatia. I felt like my life was very surreal at this point after my Stargardts diagnosis. I felt pretty lost to be honest and panicked that I needed to see more and experience more of this world that we live in, before my eyesight declined. In hindsight, I would love to see more beautiful places and travelling does make me happy, but I get just as much joy at home daily watching my…

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Vision

Two Years Today

June 13, 2019

Two years ago today I went by myself, to the opticians, for what I thought was just a 2-yearly check-up. 10 minutes into my appointment, and Stargardts had changed my life forever.  2 years on and although I have devastatingly already lost 2 lines of the eye chart in both eyes and there is deterioration on my scan pictures (although I am hoping with all I have that my eyes get slightly better once my baby is here) I am…

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Lifestyle Vision

36 Weeks Pregnant

May 24, 2019
Me at 36 weeks pregnant.

So tomorrow I will be 36 weeks pregnant. This pregnancy has really flown by and it’s scary to think I had Harvey at 38 weeks so may only have a couple of weeks left, eek! I have come out in a horrible cold the last couple of days and I’m struggling to sleep at night as much as I was because I can’t get comfy at this stage anymore. I have noticed a big change in my eyes the last…

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Vision

May – Healthy Vision Month

May 8, 2019
Me with my makeup done for eye health month.

May is health vision month. A lot of people who know me and my incurable eye disease may wonder why I bother to promote eye health and urge people to go to the opticians for regular check-ups. The reason I do this is because about 75 to 80% of eye problems picked up by opticians are either curable or manageable with the correct and prompt treatment. Wet Age-related macular degeneration can be held off with regular injections to prevent vision…

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