Browsing Tag

Stargardts

Vision

Low Vision Awareness Month

February 22, 2019
A clock with the middle portion blurred out due to central vision loss.

February is low vision awareness month, so I thought I would do this blog post explaining some of the terms used when discussing vision loss and blindness. Whenever I tell people I have a problem with my eyes and am losing my central vision, a lot of the time I am asked how that is possible and they would never have known, because I have lovely eyes and they don’t look like there is anything wrong. When we think of…

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Lifestyle Vision

A Roundup of my 2018

December 30, 2018

As 2018 draws to an end, it has made me reflect on the year that I have had. When I was diagnosed with Stargardts in 2017, for a good few months it honestly felt like someone had ended my life. I was lost, confused and scared for much of the rest of that year following my diagnosis and I was consumed with the feeling of ‘why me’. I was grateful when my little boy suggested that we do something to…

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Travel

Croatia

September 1, 2018
rovinj, croatia

I had wanted to visit Croatia about 15 years ago. I remember going into the travel agents when I was 18 and the lady had no clue what I was on about and had never heard of it, so after that I ended up in Cyprus. After my diagnosis and thinking of places I would really like to see whilst my vision was still good enough, I got on the internet and started looking up beautiful places. Croatia came up…

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Vision

Stargardts Picnic – Hyde Park

August 19, 2018

Just after my diagnosis last year, I heard about a Stargardts picnic that was happening in Hyde park, where lots of people with this disease got together to meet others going through the same thing. This time last year I was not ready to meet anyone else with Stargardts, and the opportunity passed me by. The picnic was organised again this year and by now I was desperate to meet others with the same as me as sometimes this disease…

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