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Rare Disease Day

February 28, 2019
Rare Disease Day - Picture of Me holding a piece of paper with the words # I Am Rare

A couple of years ago, I never could begin to imagine that I would be writing about rare disease day, but here I am, with my rare disease, explaining to others why February the 28th is such an important day on the calendar.  Background Information Rare disease day was started up by EURORDIS and its Council of National Alliances in 2008, as a European event, but has rapidly grown to establish itself as a worldwide event. It was first held on…

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