Rare Archives - Katies Vision

A close up of Katie with her dark hair curled and a patterned strapy jumpsuit at the BBC make a difference awards. She is holding a make a difference award and smiling. There is a purple box with white writing that says “BbC Northampton Radio” in the bottom corner.

Tomorrow morning between 7am and 9am, I will be on the BBC Northampton radio station talking about life with stargardts disease. On the same day @themichaelowen’s son, James Owen’s documentary is…

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A picture of Katie with her long dark hair looking at the cameras she has a black jumper on and is standing in front of a fence outside. Caption reads I am that 1 in 10,000. I am rare ….. stargardts disease (in pink font)

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Vision

I am that 1 in 10,000, I am rare.

January 19, 2024
Katie

When I was diagnosed with stargardts disease in 2017, I had never heard of it before, nobody I knew had either. I felt so alone, like the only person in…

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Rare Disease Day - Picture of Me holding a piece of paper with the words # I Am Rare

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Vision

Rare Disease Day

February 28, 2019
Katie

A couple of years ago, I never could begin to imagine that I would be writing about rare disease day, but here I am, with my rare disease, explaining to…

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BBC Radio Interview Tomorrow (30th January 2024)

I am that 1 in 10,000, I am rare.

Rare Disease Day

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Katie

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