I am that 1 in 10,000, I am rare.
When I was diagnosed with stargardts disease in 2017, I had never heard of it before, nobody I knew had either. I felt so alone, like the only person in…
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BBC Interview Video
I wanted to share a bit of my interview about life with stargardts disease that @bbcnorthampton shared on the news and made into a video for the “Make a difference” awards. I…
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BBC Make A Difference Awards Finalist
What an amazing evening surrounded by incredible people ♥️ I couldn’t have been prouder to have been selected as a finalist for the @bbc “make a difference awards” for the “together category”…
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2 Year Driving Anniversary
2 years today I went to the opticians and they told me I could no longer drive, that my eyes had progressed and I was over the driving limit. I…
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International Women’s Day
Happy international women’s day to all the amazing women out there ♥️ and all the amazing women I know, especially my mum who picks me up time and time again…
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Little Moments x
Sawyer said to me earlier when I was lying in his bed whilst he fell asleep “we can laugh can’t we mummy”, as he giggled about another little joke he…
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Rare Disease Day 2023
It’s rare disease day! A day to raise awareness and educate others on little known diseases and how they affect us. Did you know…⭐️ There are about 7,000 inherited rare…
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