Charles Bonnet Syndrome
Today I want to talk about Charles Bonnet Syndrome. This is something that people without sight loss and actually a lot of people with sight loss, don’t know much about,…
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Memories vs To Do List
Last week was half term and my husband had booked some time off of work. We have a jobs list for the house as long as I care to admit,…
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White Cane Day 2018
Today is white cane day. A lot of people living with Stargardts can manage very well on a daily basis without a long cane. Of course, there are exceptions who…
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World Mental Health Day 2018
Today was world mental health day. Before my diagnosis of Stargardts, I had struggled with anxiety, panic attacks and borderline agoraphobia on and off since the age of 14. I…
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The one that gets forgotten 💙
When I was diagnosed with Stargardts last year, my little boy had only just had his 6th birthday. At 6 it gets a lot harder to hide things from them.…
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One Year Vision Loss Anniversary
So, it’s happened, my one-year vision loss anniversary has finally come around. It was a weird day, obviously the same as the other days before it, but full of upsetting…
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Journey to the Centre of the Eye
Today Loco and I walked fight for sights journey to the centre of the eye. This is a virtual race where you’ll experience the world from a different perspective. Fight…
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