Charles Bonnet Syndrome
Today I want to talk about Charles Bonnet Syndrome. This is something that people without sight loss and actually a lot of people with sight loss, don’t know much about,…
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Katie
86 posts
Raising awareness for Stargardts Disease and other invisible disabilities. Content Creator. Boy Mummy. Trying to live my best life on my new path.
Memories vs To Do List
Last week was half term and my husband had booked some time off of work. We have a jobs list for the house as long as I care to admit,…
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White Cane Day 2018
Today is white cane day. A lot of people living with Stargardts can manage very well on a daily basis without a long cane. Of course, there are exceptions who…
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World Mental Health Day 2018
Today was world mental health day. Before my diagnosis of Stargardts, I had struggled with anxiety, panic attacks and borderline agoraphobia on and off since the age of 14. I…
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The one that gets forgotten 💙
When I was diagnosed with Stargardts last year, my little boy had only just had his 6th birthday. At 6 it gets a lot harder to hide things from them.…
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One Year Vision Loss Anniversary
So, it’s happened, my one-year vision loss anniversary has finally come around. It was a weird day, obviously the same as the other days before it, but full of upsetting…
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Journey to the Centre of the Eye
Today Loco and I walked fight for sights journey to the centre of the eye. This is a virtual race where you’ll experience the world from a different perspective. Fight…
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