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You Wouldn’t Know
Katie, a mother with sight impairment, highlights that her disability is not obvious. She functions like any other parent, using magnification and zoom features on her phone to cope. The post…
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BBC Radio Interview Tomorrow (30th January 2024)
Tomorrow morning between 7am and 9am, I will be on the BBC Northampton radio station talking about life with stargardts disease. On the same day @themichaelowen’s son, James Owen’s…
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Blindness is a spectrum
Blindness is a spectrum. Many people with sight loss use what aids help and suit them. Some choose not to use a cane, others use just a symbol cane or a cane for mobility, guide dog etc, All…
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I am that 1 in 10,000, I am rare.
When I was diagnosed with stargardts disease in 2017, I had never heard of it before, nobody I knew had either. I felt so alone, like the only person in the world with this scary, rare sight…
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BBC Interview Video
I wanted to share a bit of my interview about life with stargardts disease that @bbcnorthampton shared on the news and made into a video for the “Make a difference” awards. I was so…
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BBC Make A Difference Awards Finalist
What an amazing evening surrounded by incredible people ♥️ I couldn’t have been prouder to have been selected as a finalist for the @bbc “make a difference awards” for the “together…
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2 Year Driving Anniversary
2 years today I went to the opticians and they told me I could no longer drive, that my eyes had progressed and I was over the driving limit. I remember going home and just sobbing. The loss…
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International Women’s Day
Happy international women’s day to all the amazing women out there ♥️ and all the amazing women I know, especially my mum who picks me up time and time again and has been my biggest role model…
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Little Moments x
Sawyer said to me earlier when I was lying in his bed whilst he fell asleep “we can laugh can’t we mummy”, as he giggled about another little joke he had been telling me. I can’t put into…
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Rare Disease Day 2023
It’s rare disease day! A day to raise awareness and educate others on little known diseases and how they affect us. Did you know…⭐️ There are about 7,000 inherited rare diseases⭐️ 75% of rare…
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This is how I see with Stargardts disease.
This is how I see with Stargardts disease. This is why I struggle to recognise people even including my own children if they are far enough away. The closer I am to something, the smaller my…
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