I am that 1 in 10,000, I am rare.
When I was diagnosed with stargardts disease in 2017, I had never heard of it before, nobody I knew had either. I felt so alone, like the only person in…
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Rare Disease Day
A couple of years ago, I never could begin to imagine that I would be writing about rare disease day, but here I am, with my rare disease, explaining to…
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