I had wanted to visit Croatia about 15 years ago. I remember going into the travel agents when I was 18 and the lady had no clue what I was on about and had never heard of it, so after that I ended up in Cyprus. After my diagnosis and thinking of places I would really like to see whilst my vision was still good enough, I got on the internet and started looking up beautiful places. Croatia came up…
Just after my diagnosis last year, I heard about a Stargardts picnic that was happening in Hyde park, where lots of people with this disease got together to meet others going through the same thing. This time last year I was not ready to meet anyone else with Stargardts, and the opportunity passed me by. The picnic was organised again this year and by now I was desperate to meet others with the same as me as sometimes this disease…
