Sometimes, I just feel like I don’t fit in. This isn’t something new to be honest, struggling with debilitating anxiety from 14 years old onwards, gave me a good taster of what it is…

Today I want to talk about Charles Bonnet Syndrome. This is something that people without sight loss and actually a lot of people with sight loss, don’t know much about, or haven’t heard much…

Last week was half term and my husband had booked some time off of work. We have a jobs list for the house as long as I care to admit, so we debated whether…

Today is white cane day. A lot of people living with Stargardts can manage very well on a daily basis without a long cane. Of course, there are exceptions who need one, or a…

Today was world mental health day. Before my diagnosis of Stargardts, I had struggled with anxiety, panic attacks and borderline agoraphobia on and off since the age of 14. I was no stranger to…

When I was diagnosed with Stargardts last year, my little boy had only just had his 6th birthday. At 6 it gets a lot harder to hide things from them. Obviously, the days after…

So, it’s happened, my one-year vision loss anniversary has finally come around. It was a weird day, obviously the same as the other days before it, but full of upsetting memories. I remember how…