1 Person in Every 8 to 10 Thousand has Stargardts Disease
These stats above mean that my eye condition is rare, which is why I take up so much of my time talking about it. If you think I mention Stargardts too much, then great, my mission is working…
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Internalised ableism within the community
This is a difficult post to write, but one I feel needs addressing. I often don’t feel like I fit in to the community that I’m meant to be a part of. I don’t use a cane or have a guide dog and…
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Will glasses help?
This is something that I get asked a lot. “Can glasses help with your eyesight?” The short answer to this is no. My eye condition (stargardts) is a genetic disease that causes a build up of…
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Invisible Disability Awareness
I have an invisible disability called stargardts. This doesn’t mean I see the same way that other people with stargardts see or the same way I used to see. Stargardts is a progressive disease…
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Macular Week 2020
This week is macular week. Nearly 1.5 million people in the UK alone are affected by macular disease, I am one of them. Stargardts disease, the condition I have is genetic. I have a…
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A glimpse into chronic life, by COVID-19
COVID-19, I think everyone knows what it is by now and is feeling the effects of this highly contagious virus. People have lost holidays from the travel bans and others are worrying about loss…
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Behind The Smile
“It’s not always the tears that measure the pain. Sometimes it’s the smile we fake”. Most people will have heard by now of the tragic death of Caroline Flack ♥️ the woman who seemed to have…
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Low vision awareness month and Stargardts disease
February is low vision awareness month. I thought this was a good opportunity to talk about my eye condition, Stargardts disease, that is taking away my precious eyesight. Stargardts…
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Remembering You
Yesterday I said goodbye to my Grampa George. It was honestly one of the hardest days of my life, but something I couldn’t avoid and just had to get through it. It was a lovely day as strange…
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You will always be in my heart, because there you are still alive 💙
On Thursday evening, my Grampa passed away suddenly. I will never forget the phone call from my mum. My Grampa was the only constant and consistent male relative in my life from the day I was…
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